Our Services

Our Services

Research

  •  Participation in worldwide clinical trials

  •  Funding of research projects into the cause, diagnosis and treatment of blistering diseases

  •  Participation in international research projects

  •  Research and publications in international medical Journals

Advocacy

  •  Increasing public awareness

  •  Education for health care professionals

Support

  • Advice on living with the disease

  •  Dedicated  EB nurse at St George Hospital

  •  Local support groups

  •  Email discussion group

Education

  • Basic facts about the diseases

  • Information about available treatments

  • Updates on current research

  • Participation in clinical trials

  • Patient-doctor meetings